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Liam + Glo

Special Needs Parenting, Lifestyle, and Wellness

Trisomy13

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profile picture liamandglo https://instagram.com/liamandglo/
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Lansing, Michigan
I recently found myself eyeballs deep in awful comments from ableist parents of average kids. These comments were spread across different forums and topics. Comments ranged from “everyone is a little autistic” to “helicopter moms are so annoying.” Oh, and how could I forget- “kids with behavior issues shouldn’t be allowed in classrooms.” 🐻
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Between those comments and bad experiences in real life, it had me thinking back to the days of peak parenting struggle. When unzipping my skin and running away seemed like a pretty good solution to the chaos. Rather than writing an I See You post to the not-so-average bear moms- because this whole site is for you. I wrote this letter to the average bear moms of my past and present, offering advice for the future. #dearmoms #dontraiseanasshole 🔗In bio- Latest on the blog. Comment if you can relate. 🙋🏽‍♀️
profile picture liamandglo https://instagram.com/liamandglo/
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Lansing, Michigan
Spreadin’ a little awareness on ya- March is Trisomy Awareness month. People have 23 pairs of chromosomes.  Tri-somy means three-chromosomes.  Trisomy 13 means there’s an extra chromosome kickin’ it with chromosome pair 13.  Down Syndrome is Trisomy 21- extra chromosome on pair 21.  Make sense?  Trisomy 13 is also known as Patau Syndrome (named after the dude who first ascertained T13). •
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There’s a common misconception that Trisomy 13 is rare.  It is not.  However, you don’t see or hear of it often.  Trisomy 13 is common in occurrence but rare in prevalence.  In other words, trisomy 13 happens often, but typically results in miscarriage, stillborn, or death.  For that reason, Trisomy 13 is medically labeled incompatible with life, although that is clearly bullshit.  Despite trisomy 13 not being rare, those who are thriving are.  With better education resulting in greater medical care, Trisomy 13/Patau Syndrome will be synonymous with life. 💛 Read full Understanding Trisomy + Trisomy 13 on my blog link in the bio and scroll or bio link and menu. ✊ •
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#compatiblewithlife #trisomy13awareness
#specialneedsmomlife #trisomy13life #trisomyawareness #trisomyawarenessmonth #homiewithanextrachromie #trisomy13 #trisomystrong #specialneedsmom #trisomyfamilies #spreadawareness #complexconditions #geneticdisorder #extrachromosome #extrachromosomeextraawesome #extrachromosomeextracute #raisinganxmen #rarecondition #geneticanomaly
profile picture liamandglo https://instagram.com/liamandglo/
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Peacock Road Family Farm
I had a hard time choosing which Santa pics to post. There’s so many from so many events. 😜Merry Christmas Eve. 🎄
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#peacockroadfamilyfarm #merrychristmasyafilthyanimal #michiganfarms #michiganblogger #autismmom #trisomy13 #trisomy13life #specialneedsmom #christmasspirit #christmascountdown
profile picture liamandglo https://instagram.com/liamandglo/
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Peacock Road Family Farm
Take a knee, Rudolph! Liam + I discovered a NEW one! 💚😉 I hope everyone has found some calm amidst the holiday chaos. If not, maybe this BOOP will make you smile. ✌️ #moveoverrudolph #boopmynose #adventureswithliamloowho @peacockroadfamilyfarm 🎄
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#peacockroadfamilyfarm #boopmynose👆 #boopmysnoot #holidayspirit #newreindeer #michiganblogger #momlifestyleblogger #christmasinmichigan #bigdiscoveries #iwantcreditforthis #someonetellsanta #michiganfarms #boopthatsnoot #ninthreindeer #lookwhatifound #itsalmostchristmas
profile picture liamandglo https://instagram.com/liamandglo/
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Liam had his annual genetics visit. This was our first time meeting Dr. Amalfitano. Apparently, Liam was on his bucket list to meet before ending his career seeing patients and accepting the position as Dean of Osteopathic Medicine at MSU and dedicate his time in the lab (doing some seriously incredible things). I’m no stranger to specialists wanting to meet him. No stranger to doctors/professors wanting their students to meet him. After recent pediatric visit, the doctor and student left the room and I heard the student say, “that kid is incredible.” I heard his doctor respond- “that’s why you must see past what’s written in the file and see the person.” The first time we saw a geneticist , there were several there...just to see him. At one point Liam and I left the room and came back to one calling Liam “an anomaly amongst the rare.” During his autism evaluation at Henry Ford, geneticists who weren’t involved in the evaluation- lined the hallway to meet him.
This time was no different. Amalfitano gazed at Liam with a smile, shaking his head. “I can’t believe it. Genetics is my life and I’ve never seen anything like him.” He may have been extra impressed when he tried to shake Liam’s hand and instead Liam poked out his elbow saying, “cooties are a thing, chicken wing.” 😆The visit consisted of watching Liam play, him asking me a million questions about Liam and me asking him a million questions about genetics and shared theories on how Liam came to be and how we’ve been so damn lucky.

He told me he always has an earful for parents but he had nothing for me. He thanked me a dozen times for meeting him (instead of our usual) and told me I’m doing everything right and to just keep doing what I’m doing. 😊 At one point he asked Liam to make a repeat after me verbal agreement with him- “I promise I will always trust and listen to my mom.” He told Liam he was “lucky to have an amazing mom” and as long as he trusts and listens to me he “will continue to do well.” 💗😭 #trisomy13awareness #trisomy13life #compatiblewithlife #fullheart #trisomy13