Our journey to Trisomy 13 unfolded a bit differently than most but was overwhelming, nonetheless. If you haven’t read about what Trisomy 13 is- I wrote a basic and easy to understand explanation.
How We Got Here
It all started back in ...
More Diagnoses + Therapy
At 3 years old, Liam was diagnosed with speech apraxia, oral apraxia, receptive and expressive language delay, dyspraxia, developmental coordination disorder, hypotonia, and sensory processing disorder (affecting all 8 senses). He started private speech and occupational therapy while I continued to supplement at home. Luckily, he was fluent in ASL and he and I could easily communicate.
Health Issues + Gluten
After experiencing serious health concerns, I went gluten-free in fall 2017 and Liam in January 2018. In a visit with my rheumatologist, my awareness was brought to chronic illness and the correlation to chronic stress. This was a BIG moment for me and the precursor to me creating my mantra and choosing to live by it- live intentionally, seeking less overwhelm and more enrichment.
Thanks for ridin’ shotgun on this adventure! I could not be more grateful for your support on this banana sandwich ride. Please share your thoughts in the comments after posts and share helpful posts with your tribe.